Honoring a Talented Team

Here is an email I wrote today to the amazing team at Rapunzel Creative — the marketing agency I launched in 2011. I also wrote this poem honoring them and our work together.

The trial begins šŸ‘©ā€āš–ļø

Just before boarding my plane yesterday, I found out that I was officially accepted into the clinical trial for a drug called RINA-S (Phase 2, Group C, non-randomized study).

A Video Snapshot: Travel for Cancer Care

My friend Dan Stillman joined me on my trip to Boston on Thursday. He created an insightful video that gives you a glimpse into what a day looks like for me, a cancer patient traveling long distances for care.

Wow…that was fast!

I spent the morning in the ER for what I thought was a bowel obstruction. The CAT scan that was taken shows a progression of my cancer.

My Heart Beats On ā¤ļø

Iā€™ve written two updates now that I havenā€™t shared on this blogā€”and I think itā€™s because thereā€™s just so much going on with me, I honestly donā€™t even know what to say.Ā 

Turning The Tide Ovarian Cancer Retreat – June 21

I didnā€™t know what to expect when I pulled up to the rustic camp in Washington, Maine. What would the days here be like? Would people be friendly? Would the event be meaningful? Andā€”my biggest worryā€”would I leave feeling depressed, sad, and overwhelmed?

It’s been a year!

Itā€™s hard to believeā€”itā€™s been a year since my 2nd recurrence. Now on my third.

What is it like to lose your vision?

This is a question I never asked myselfā€”until it was thrust upon me this past weekend. I woke up Sunday morning unable to read my phone. I thought, Thatā€™s strange. Is it my glasses? Why canā€™t I see the screen?

The drip goes on…

My first infusion went well without any kind of reaction and now it’s just up to me to rest and wait to see how my body handles the treatment. Reactions may begin as early as today.Ā 

Not so great news šŸ¤•

As promised, I wanted to share an update on my latest scan and blood work. Unfortunately, the cancer has returned much more quickly than expected.

Next Steps – Do Nuthin’

My sister Karen and I met with my Dana Farber oncologist today via Zoom. We started the meeting talking about the Chest and Pelvic/Abdominal CT scans. The oncologist couldn’t provide any other interpretation of the radiology notes.

Thank you Chemo AngelsšŸŖ½

want to give a shout out to my Chemo Angels.šŸŖ½ These are the friends and family who sat with me through cold capping, chemo and crankiness. I’ll explain the crankiness later.

Lynn & Pilot in this article: PALS SkyHope offers

The vast expanses and remoteness of parts of Maine are what make it so attractive to many people. But those same characteristics can also become a huge roadblock to getting very sick people the life-saving treatment and specialty care offered in large cities.

Here we go again… June 29, 2024

My chemo journey starts this Tuesday with a treatment called Gem Carbo. I will be having a total of six treatments, one treatment every three weeks.

Thought I Had More Time – January 24, 2024

I truly truly, truly believed I would have more time in remission. I woke up this morning to anxiously check my CA125 cancer marker and it’s now moved from an 11 in my remission state to a 36 three weeks ago and now a 43.

The best gift! December 25, 2023

This is my chance to say a heartfelt ā¤ļøā¤ļøā¤ļø THANKĀ  YOU šŸ™šŸ™šŸ™ to you for the best gift of all: your support and love.Ā 

Hello God It’s Me Lynn – January 29, 2023

I should be waking up in Maine šŸŒ². As I open my eyes in the morning light, I roll over in bed to look out the window at the water and I feel deep gratitude for the immense beauty before me. The sea. The snow. Even the wind.

#2 – January 17, 2023

Sitting in Sloan’s infusion room with my friend Joyce getting chemo round #2, Taxol and Carboplastin.

Harried – January 10, 2023

I’m not posting about the new book or the split from the royal family. I am writing about my dog, Lily, pacing in the bathroom. “How does she know? Why won’t she settle down,” I ask myself, sighing

Untapped – January 07, 2023

Thursday morning I was set free! My thoracic surgeon removed my Pleurex catheter. That foreign object that was constantly pulling and pinching.

Down & Out – December 26, 2022

I honestly didn’t fathom I would end up in the ER again today. I had a bit of an odd reaction when a new visiting nurse was getting ready to drain my catheter this morning.

Head Trip – December 22, 2022

Sometimes we need to go on a journey to figure out where we are meant to be. Yesterday I went wig shopping with Laura (much #gratitude Lauraā¤ļø.)

Fuel Injection – December 23, 2022

I hopped on the liquid gold train about about 3pm starting with a series of injected preventatives: Benadryl and two others to try to prevent or minimize reactions.Ā 

Crazy NY December 13, 2022

Thank you Lorraine for navigating NYC traffic to get me to Sloan. A packed Sloan parking garage sent us around a few blocks trying to find somewhere to park. The floor I’m on is like a busy beehive of activity.

My Other PET December 08, 2022

I wish I was writing here about Lily but I got the results today on the other PET. šŸ˜£ PET shows high grade serous cervical cancer.

Timeline

A timeline of the first few months of my cancer journey.