I’ve written two updates now that I haven’t shared on this blog—and I think it’s because there’s just so much going on with me, I honestly don’t even know what to say.
I guess the good news is first: My CA125 is down to 13, which is fantastic and my oncologist at Dana Farber says recent scsns are “remarkable!”
As good as this news is, my eyesight is once again blurry. I feel like my body is breaking every which way like a China doll that was dropped. challenges ranging from incontinence to rapid heartbeat to dental issues and the best of all … an incredibly slow healing insufficiency fracture in my sacrum. My body went from having osteopenia, which is very normal for my age, to borderline osteoporosis and osteoporosis in the sacrum, in a matter of a year.
In one of those unpublished posts, I wrote about this being a time of grieving. And I still believe that. I so badly want to be riding my bicycle right now—but that’s the last thing I can do. In fact, today, even walking and standing are uncomfortable. It’s hard to say it, but this might be a new normal, at least for a while. And I’m working on accepting that.
What I hope—what I really want—is to stay on this current drug long enough for my body to have the time and space it needs to heal. I want to get back to a stronger version of myself. That’s my wish.
Anyway, I know this is a lot to take in. Thank you for reading. I’m doing the best I can. And I’m incredibly grateful to the friends who continue to show up—giving me rides, holding my hand, listening without judgment. I don’t know what I’d do without you.
love,
Lynn
❤️
p. s. I did make it out sailing last week with the MDI Sails women’s group.
